Friday, February 8, 2019

MANAGE NURSING CARE AT HOME, "Ch. 10 Nervous System"


How to Manage Nursing Care at Home



ELEVEN-SYSTEM MEDICAL ASSESSMENT

The body can be described as being comprised of eleven systems.  Each system is made up of organs, and each organ is further broken down into many tissues and innumerable cells.   Systems are organized groups of structures classified as to performing a function, as follows:
·       Nervous system
·       Respiratory system
·       Cardiovascular system
·       Lymphatic and immune system
·       Gastro-intestinal system
·       Endocrine system
·       Reproductive system
·       Urinary system
·       Integumentary system
·       Skeletal system
·       Muscular system

These systems and their disorders are discussed in this and later chapters, with an emphasis on those conditions likely to result in long-term nursing care at home.
 
    The nervous system is comprised of the brain, spinal cord, nerves, and sensory organs such as the eyes and ears.  From impulses received from outside the body due to tactile stimulation from the skin, to inside communications via hormones, nerves, sensory organs, blood and lymph transmit these messages to the brain via the spinal cord and integumentary (skin) system.  In the brain the impulses are translated into fine or gross motor responses as well as active or reactive actions in response to adverse or pleasurable stimuli. The brain also houses memory, cognition, language and many other sophisticated methods of communication and understanding all by way of nerve impulses.

     Some of the various nervous systems conditions and care considerations appear below.

Cerebrovascular Accidents (CVA), commonly referred to as “strokes,” are common, with 800,000 diagnosed yearly.  They rank fourth as a leading cause of death after heart disease, cancer, and pulmonary diseases.  (Recently, some medical specialists have listed medical errors as the third largest cause.)   Loss of neurological function can be sudden or gradual due to a long-term bleeding incident into the brain.  Most strokes result from a blood clot that either originated in the brain (thrombosis) or traveled to the brain (embolus).  Once the clot occludes a brain vessel, the area no longer receives enough oxygen, causing a cerebral infarction (tissue death).  Brain hemorrhages are another main cause of strokes and can occur by a tear in a vessel wall, hypertension, or from an injury.  As bleeding continues, pressure is placed on the brain tissues, causing brain tissue damage.  Loss of blood flow to the brain results in injury to various parts of the body, causing neurologic deficits.  The injury may be temporary and resolve over time or cause long-term or permanent disability.  The extent and location of the region of the body that is impaired is solely determined by the area of the brain that was damaged.   As all bodily functions are controlled by the brain, the possibilities are endless.

Care Considerations for Cerebrovascular Accidents: 
1) Paralysis or decreased function to one side of the body (hemiplegia), to one or both lower, or to one or both upper extremities can occur.  Activity difficulties may also be due to loss of sensation, simple weakness, or changes in muscle tone (being spastic or flaccid).  Loss of fine or gross motor skills could be apparent.  Depending on the injury, various devices could prove helpful, including canes and wheelchairs, as well as many other occupational therapy aids. 
2) Elimination patterns may be altered and could encompass voiding and/or defecation.  Catheterization, whether intermittent or continual, may be required if bladder retraining is unsuccessful.  Bowel evacuation might be accomplished by use of medication, enemas, or laxatives if retraining proves ineffective. 
3) Obtaining the proper amount of nutrients and fluids could be problematic due to lack of appetite, nausea or vomiting, dysphagia (inability to swallow), loss of sensation in the mouth and throat, medication side effects, or facial paralysis.  If insufficient quantities are consumed, a percutaneous gastric feeding tube could be placed for long-term use.  Shorter-term aids include centrally placed venous catheters for total parenteral nutrition (TPN). 
4) Perception and sensory deficits are often present.  These may include vision difficulties such as blurred or double vision (diplopia).   Partial loss of vision (monocular blindness) or total blindness could also result.  Disturbances to taste and smell are reported.  Touch and skin sensations are often not discriminated, and loss of feeling (neuropathy) could lead to unknowingly received injuries.  Dysphasia (decreased speech capacity) may take the form of difficulty producing speech (expressive), understanding speech (receptive), or both (global).  Aphasia is an inability to communicate via speech, but also includes inability to understand writing and signs or pictures. 
5) Cognitive function impairment includes inability to recognize:  faces (prosopagnosia), speech versus not speaking sounds (auditory agnosia), objects (visual agnosia), colors (achromatopsia), and visual objects (visual agnosia) to name a few.  Apraxia is the inability to use objects properly when there is no muscle deficit. 
6)  Skin care is essential due to possible incontinence, paralysis, lack of sensation, and inability to ask for assistance.

Alzheimer’s and Dementia      

The severity and increasing prevalence of these neurological conditions are evident in these quotes from the Alzheimer’s Association’s alz.org/facts (our emphasis added):

·       Alzheimer’s disease is the only cause of death among the top 10 in America that cannot be prevented, cured, or even slowed.

·       Today, more than 5 million Americans are living with Alzheimer’s disease, including an estimated 200,000 under the age of 65. By 2050, as many as 16 million will have the disease.

·       You can use the free, online Community Resource Finder to easily locate Alzheimer’s and dementia resources, programs, and services in your area. To learn more about this comprehensive resource for people facing Alzheimer’s or other dementias, visit alz.org/crf.

·       The Alzheimer’s Association’s 24/7 helpline provides reliable information and support to people living with Alzheimer’s or other dementias, caregivers, health care professionals, and the public. Call toll-free, anytime, day or night, at 800.272.3900.

·       Since 1982, the Alzheimer’s Association has committed over $340 million to more than 2250 scientific investigations with the goal of identifying novel approaches to diagnosis, treatment and – one day – a cure.

·       Warning Signs of Alzheimer’s (alz.org):

§  Memory loss that disrupts daily life.
§  Challenges in planning or solving problems.
§  Difficulty completing familiar tasks at home, at work, or at leisure.
§  Confusion with time or place.
§  Trouble understanding visual images and spatial relationships.
§  New problems with words in speaking or writing
§  Misplacing things and losing the ability to retrace steps.
§  Decreased or poor judgment.
§  Withdrawal from work or social activities.
§  Changes in mood and personality.


Care Considerations for Alzheimer’s and Dementia:
        Gary Joseph LeBlanc (2013) has written a clear and concise little book, Managing Alzheimer’s and Dementia Behaviors: Common Sense Caregiving, which stresses the following:

Early warning signs of Alzheimer’s include regular difficulties in recalling: dates, appointments, familiar names, and information given minutes before. Reading and numeracy may suffer markedly, despite a flood of excuses.
Hospitalization is disruptive and enhances their confusion.
Dementia is a general term for cognitive and memory loss, and Alzheimer’s is one of the possible causes.
Early-onset Alzheimer’s afflicts about a half-million people under the age of 65 and is more heritable than the more prevalent Alzheimer’s.
Such patients benefit greatly from the maintenance of routines.
Early in the progression, patients can have their thoughts readily redirected. Later, this becomes nearly impossible.
Approach these patients slowly, gently, looking to see if they recognize you. Introduce yourself, even to family.
Be prepared not to be recognized or only after long delay.
Go with the flow. “You cannot move them to your world, you have to move into theirs.”
Be prepared for their hallucinations and delusions. Exhibiting your frustration will only exacerbate the situation.
Don’t debate, elude. “I just went out and checked. They must have moved.”
Delusions are false beliefs.
    Hallucinations are false perceptions.
Keep the environment well lit, for safety and to reduce “sundowning.”
Allow your patient a full-minute delay in responding to you.
Communicate face-to-face, not on the run or at a distance.
Be alert to pain versus frustration.
Avoid combat. Retreat. Don’t take verbal abuse personally.
Most important asset of a caregiver: patience, patience, patience.

        Mr. LeBlanc’s little book is a bargain at amazon.com for those dealing with such patients. See also the excellent book by Scallan (2015), outlined in our Appendix.
    
         Also, very highly regarded is the much longer (384 pages) book, The 36-hour Day: A Family Guide to Caring for People Who have Alzheimer Disease, Related Diseases, and Memory Loss, 5th Edition (2011), by Nancy L. Mace and Peter V. Rabins, originally published in 1981. It is available in ebook, paperback, audio book, and hardcover editions.

          On a personal note, this afternoon, when I [DWC] came to check on my wife and give her a kiss, she asked, “What’s your name?” Yesterday, she told me she loved me. Tomorrow? Recently, as I pushed her in the wheelchair along the path through our park-like setting, she said she would like to live to be 100. I commented that would be 29 more years and asked her if she was enjoying her life, and she replied that she was.


Epilepsy (aka Seizure Disorder) is an abnormal electrical discharge of brain neurons which may be hypersensitive and react to unknown chemical or environmental stimuli.  Seizures may also occur due to metabolic disorders such as hypoglycemia or hyponatremia (deficits in sugar or salt, respectively), infections such as meningitis, fever, drug and environmental toxins, or trauma.  They may be unrelated to any known activities or causes, thereby making it difficult to ascertain origins.  Patients may experience brief loss of consciousness and/or whole-body convulsions lasting many minutes. 

Care Considerations for Epilepsy: 
1) Patient may state he has “aura” which may signal an attack.  Precipitating signs may include pungent smells, nausea, dreamy feelings, and visual disturbances as flashing lights. 
2) Patient my experience fear and shame during seizures due to lost bodily functions; fear from inability to control or predict seizure. 
3) Due to loss of consciousness, orient patient, explain slowly. 
4) Anoxia (loss of oxygen) can occur.  During and after seizure, monitor oxygen saturation. 
5) Inspect body for any injuries. 
6) Lasting safely modifications may need to be enacted which may include perceived loss of freedom by patient, such as restricted driving.  Expect some loss of “self” and independence. 
7) Consider adding padding, removal of rugs, and improving the availability of suction apparatus. 
8) A medical alert bracelet, along with wallet medication information, is imperative.

Parkinson’s disease is a neurological impairment leading to a slow decline in muscle function.  It leads to progressive muscular rigidity and decrease in movement (akinesia), and involuntary tremors.  Often, initiating ambulation is difficult, and the patient is “stuck” and unable to move.  This is a hallmark of the disease.  Once initiated, the patient’s gait gains momentum that cannot be easily controlled.  Tremors are evident and often appear when the extremity is at rest.  There is often a unilateral “pill-rolling” tremor.  As the disease progresses, it affects the other muscular systems, such as digestion and elimination.  Causes of the disease are unknown.  This is a disease that affects purposeful muscles versus involuntary muscle movements.

Care Considerations for Parkinson’s Disease: 
1) Tremors are prevalent but decrease during purposeful movements.  Patients should utilize all muscles in both upper and lower extremities. 
2) In many instances, the body is bent forward to initiate movement because it is difficult to get the body in motion.  Time and patience are required to initiate motion. 
3) While walking, a potential for fall can easily result, due to the bent body position, inability to alter course quickly, and lack of peripheral vision fields due to forward intent.  Once in motion, patient cannot quickly react nor avoid obstacles.
 4) Other injuries resulting from lack of movement include bedsores and urinary tract infections (UTI).
5) Assess for additional deficits, including loss of balance, speech difficulties (dysarthia), and problems with eating and swallowing (dysphagia). 
6) Obtain evaluation of level of consciousness. 
7) As this is typically a disease of the muscles and not of the mind, psycho-social evaluation is paramount.

Multiple Sclerosis (MS) is an autoimmune disease causing defects in the myelin sheath that insulates the nerves that conduct electrical impulses from the brain and the spinal cord (the central nervous system).  Lack of this myelin insulation (demyelination) is similar to a road under construction: impulses may be slowed greatly or blocked completely rather than traveling at a high speed to get to their destination.  MS affects the nerves of the eyes and spinal column primarily, but the deficits are not limited to them.  However, nerves of the peripheral nervous system are not involved.  Often the disease takes years to diagnose due to the characteristic exacerbations and remissions that the disease presents.  Signs and symptoms of exacerbations may be transient or last for long periods and may eventually become chronic.  The resulting disabilities depend on the location and extent of the demyelination, and on what remyelination occurs after an exacerbation.

Care Considerations for Multiple Sclerosis: 
1) During exacerbations, treatment is supportive, depending on the location affected.  This typically includes bed rest, prevention of pressure ulcers, along with bowel and bladder management. 
2)  Monitor ventilation and promote deep breathing and coughing to eliminate stasis of secretions since respiratory muscle can be affected.  Monitor oxygen saturation.  Provide incentive spirometer for visual reading of deep breathing.  Be aware for signs and symptoms of pneumonia. 
3) Muscle weakness, spasms and hyper-reflexia (over-reaction to stimuli) may occur.  Ensure precautions for fall potential and injuries, difficulties swallowing (dysphagia) and potential for aspiration pneumonia, poor gait (ataxia) and speed.
 4)  Patient may experience paralysis: monoplegia, hemiplegia, or quadriplegia (paralysis to one extremity, one side, or all extremities, respectively).  Patient safety and care issues are paramount.  Frequently aid in or provide range of motion exercises to keep joints fluid and prevent contractures.  Prevent foot drop by utilizing high-top footwear.  Utilize aids, such as canes and other rehabilitating equipment, to encourage self-care. 
5) Visual disturbances are frequent.  These can range from peripheral vision loss, to blurred vision, to complete blindness.  Assess for vision disturbances prior to ambulation or activities of daily living. 
6) Promote bowel and bladder elimination, and prevent harm to skin from incontinence by using frequent adult diaper changes, skin barrier creams or ointments, frequent turning and positioning. 
7)  Reassure patient about loss of function he is experiencing but make no guarantee that function will be restored.  Remissions often occur with this disease, but such are not necessarily complete. 

Myasthenia Gravis is an autoimmune disease that effect the nervous system and exhibits as a periodic, progressive, and extreme weakness of voluntary muscles, which are the group of muscles which we “choose” to utilize for activities. Primarily affecting muscle of the face, lips, eyes, and the activities of chewing and swallowing (mastication), and speech, this disease can affect any skeletal muscle in the body, including those for ambulation.   This disease prohibits the conduction of the nerves to the voluntary (skeletal) muscles, and exacerbations occur during repetitive use of those muscles.  A very simplified explanation is that there’s no gas left in the tank to make the car (skeletal muscle) run.  It is a disease of exacerbations and remissions; often, symptoms worsen during the day but are improved after resting the affected muscle group.   Extreme muscle fatigue that lessens with rest is one of the hallmarks of this disease.  There is no cure, but most patients tend to live relatively normal lives, especially when they know their symptoms, recognize them, and can provide the rest that is necessary to abate exacerbations.   

Care Considerations for Myasthenia Gravis: 
1) As medications are not effective, there is no “fix” for this disease.  The patient must understand that knowledge of his body will be the main treatment. 
2) Knowing outward symptoms by the patient and family may provide signs of over-exerted muscles caused by the blocked and weakened transmission of nerve impulses to the muscles.  For example, a dropping or drooping of the eyelid is often evidence of a potential exacerbation.  Prior to the drooping, the patient may be tilting his head back to see better due to the muscle weakness of the eye because the visual field is lessened by the eyelid interference. 
3)  Attention should be paid to breathing and ventilation, especially during exacerbations.  The respiratory muscles can often be compromised, and this could result in hypoventilation.  Not breathing deeply and fully due to reduced muscle accessibility, both inhalation (breathing in) and exhalation (breathing out), decreases could potentially lead to dangerously decreased oxygen input and carbon dioxide output.  In addition, with prolonged decreases in ventilation, respiratory tract infections could develop, including pneumonia.  Assess oxygen saturation; promote use of incentive spirometer to encourage deep breaths and full expansion of lungs, and monitor level of consciousness and awareness. 
4) Promote an environment and personal security that allow and encourage rest when needed. 
5) Understand that loss of ability due to continued activity, debilitating muscle fatigue, and the losses associated with “wanting to do” but simply “cannot even consider” lead to loss of self-esteem.  Encourage patient to schedule down-time. 

Traumatic Brain Injuries (TBI) produce a range of disturbances, from short-term and slight trauma resulting in no apparent damage, long-term brain dysfunction leading to life-long impairment, to a vegetative state in the most extreme cases.  These are injury-induced conditions which cause neurological damage and do not stem from illness or disease.  A variety of accidents can cause TBIs, including sports injuries, playground falls, motor vehicle accidents, lack of oxygen (hypoxia), falling off ladders or down stairs.  Recovery from any brain injury varies according to the area of the brain impacted as well as the wellness of the individual and how well the patient reacts to treatment and therapy.  Examples of these brain injuries include concussions, skull fractures, and hemorrhages.

Care Considerations for Traumatic Brain Injuries (TBIs): 
1) Constant assessment is necessary to determine actual consequences of the injury.  Time will indicate acute deficits or chronic conditions. 
2) Areas of the injured brain dictate deficits, and these may include motor skills (weakness, loss of balance, unsteady gait or ataxia, paraplegia, and quadriplegia), sensory changes (blurred vision, decreased acuity, blindness, loss of taste or smell, hearing difficulties, and tinnitus), behavior changes, bowel and bladder incontinence, dizziness or fainting (syncope), swallowing difficulties (dysphagia), chronic headaches, increased sensations to or loss of awareness of various body parts, increased or decreased reflexes, speech difficulties (expressive aphasia, receptive aphasia, anomia), or breathing difficulties. 
3) Physical and occupational therapy is often necessary.  Rest should be provided between care and therapy to promote maximum effectiveness. 
4) Slow-talking and short-term therapy can aid in decreasing frustration associated with slow progress of therapy. 
5) Ensure airways are protected if gag and swallowing reflexes are impaired. 
6) Encourage deep breathing to promote lung expansion and ventilation. 
7) Avoid coughing, straining or bearing down which can increase intracranial pressure. 
8) Provide skin care and equipment to decrease risk of pressure ulcers.  Turn and position body frequently.  Provide an air mattress to increase circulation and decreases stasis of blood. 
9) Assist with range of motion exercises to avoid deep venous thrombosis.

Guillain-Barre’ Syndrome is thought to be an immune disorder that affects the nervous system.  It is hallmarked by acute and rapidly progressing loss of peripheral nerve transmissions to muscles due to demyelination.  This results in muscle weakness, immobility, and paralysis beginning in the legs and ascending to the arms, body trunk, and face.  Often respiratory muscles are affected which hampers breathing.  The disease process takes three distinct phases:  The “acute phase” begins when the first symptoms develop and continues until no further deterioration or loss of function is noted.  This phase may last anywhere from one to three weeks typically.   During the next few days to weeks, the “plateau phase” occurs.  No further loss of function is noted but there is also no betterment.  The last phase, “recovery phase” can last months to years but recovery is usually complete.  This is the time when remyelination occurs and growth of peripheral nervous tissue takes place.

Care Considerations for Guillain-Barre’ Syndrome: 
1) As the muscles necessary for respiration may be involved, assessment must be ongoing to determine loss of function.  While the patient is recovering, provide use of incentive spirometer to promote lung expansion. 
2) Paralysis of any or all extremities is likely.  Provide skin care, turn and position, and inspect skin for any breakdown or presence of any deep venous thrombi (DVT, blood clots); check for swelling, reddening, warmth, suddenly visible veins. 
3) Provide gentle massage to the extremities.  Deep massage is not performed due to the possibility of DVTs. 
4) If facial muscles are involved, provide oral care frequently.  It is possible that eyelids will not close properly and completely.  Instill eye drops to lubricate them. 
5) During recovery when physical and/or occupation therapy is provided, ensure rest is given between sessions to promote maximum benefit. 

Sensory Deficits can occur with any disease or injury of the nervous system but are not limited to this system solely.  Sensory functions include hearing, vision, speech, taste, smell, and tactile sensitivity.  While some modifications to the environment or use of tools may minimize the deficit, this is not the case with deficiencies in taste and smell.

Care Consideration for Sensory Deficits: 
1) Hearing Difficulties:  Deafness, whether partial or complete, is not only disease-induced but also results from age, environmental noise, medications and viruses.  Hearing aids may help mitigate the problem, but other useful measures include using subtitles on the television, speaking directly to the patient so visualization of the lips is possible, speaking clearly and slowly, and decreasing background noise. 
2) Vision Difficulties:  There are many forms of vision deficits; these include decreased acuity, double vision (diplopia), light sensitivity (photophobia), blurred vision and loss of the visual field.  There are few measures that can be taken to decrease this state.  Utilization of trained professionals can provide teaching to enhance life.  However, dependent on the severity, large print face, recorded books, and bright lighting may prove beneficial to some. 
3)  Speech Difficulties:  These could be simply the inability to utter sounds (muteness) or a brain impairment called aphasia, the inability to communicate using speech, writing, or signs.  It is almost as if communication is attempted between two people speaking two different and unrelated languages.  Aphasia can take the form of being receptive (lack of understanding of words spoken by others) or expressive (inability to speak in meaningful and proper words).  Anomia is the inability to recall names of objects.  If the patient has some ability such as reading, communication can be maintained via use of written words or signs.  Time and continued education may be beneficial.  Frustration and anxiety are common.
 4) Tactile Sensitivity:  Paresthesia is caused by injury to the nerves.  If it often painful and unpleasant, and described as a numbness, stinging, tingling, or burning.  While there is little that can be done other than medications, running water over the appendage, wax dips, and massage can decrease the discomfort.

        


    ###

Contact information:
Diane R. Beggin, RN
40 Sycamore Drive
Montgomery, NY 12549


WHAT EVER HAPPENED...? "Recommended Books, II"






The Gift in You: Discover New Life through Gifts Hidden in Your Mind, by Dr. Caroline Leaf
·       “You were wonderfully and beautifully made with specific intent and incredible purpose.”
·       “The frontal lobe (also called the prefrontal cortex) is capable of an impressive display of functions, is connected to all other parts of the brain, and is where all the neural connections converge. It also houses the brain's most sophisticated circuits. This enables the frontal lobe to integrate and manage all the activities of all other parts of the brain.” [And this is one part of my brain that is permanently damaged.]
·       “In fact, God has designed the brain in such a way that as a memory is brought out of the nonconscious mind into the conscious mind, it becomes unstable and has to change – either in a more toxic or less toxic direction: it never stays the same. That’s great news for us because we can fix – rewire – toxic memories. Your amazing ability to use your frontal lobes to stand outside of yourself and observe your own thinking provides the fuel for this change.”
·       “Laughter quite literally dissolves distressing toxic emotions because you can’t feel mad or sad when you laugh. When you laugh and have fun, endorphins are released which make you feel so great and at peace, those toxic thoughts can’t get out of your brain fast enough. Fun protects your heart because when you laugh and enjoy yourself, your body releases chemicals that improve the function of blood vessels and increases blood flow, protecting against heart attack. Fun reduces damaging stress chemicals quickly, which, if they hang around in your body for too long, will make you mentally and physically sick. Fun and laughter also increase your energy levels.”
·       “If you don't build relaxation into your lifestyle you will become a less effective thinker, defeating your ability to accomplish your gift. In fact, for the brain to function like it should, it needs regroup consolidation time. If it doesn't get this, it will send out signals in the form of high-level stress hormones some of which are adrenaline and cortisol. If these chemicals constantly flow they create a ‘white noise’ effect that increases anxiety.…”
·       “The neuroplasticity of the brain will grow the toxic unforgiveness an even deeper root and the branches will get ever more pervasive….”
·       “Forgiveness is not excusing the behavior, but it is placing the situation into God's hands.”
·       “God wants to protect our brains and does not want us getting worked up about little things.”
·       “…with the neuroplasticity God has so graciously built into the function of our brain, you really can achieve lasting change. Never forget: you can change your brain and release your gift. So, plant new seed and walk in confidence that change can happen – we can see it in Scripture, just as we can in science.” [Amen!]

The Tourette Syndrome & OCD Checklist: A Practical Reference for Parents and Teachers, by Susan Conners
This book is an excellent resource for all teachers because it describes in superb detail how to help the student in the classroom who is distracted with TS or OCD.
It is also very helpful for families to be better equipped at advocating for their child's needs.
As with another book I recommended here (Life Amplified by Karen Skogen Haslem), I hope these two books are future textbooks for college classes for educators. They have plenty of information to absorb and then help their students with.

Miracle on Hammertown Road: One Man’s Fall and Salvation, by Jim “Bubba” Bay with Mic Ruzich
This book is about a man who fell off the side of the road one night when he was out walking, climbed out of a deep hole, and lived to tell his story about brain injury and many other medical problems because of it. Here are some of the highlights that have helped me:
·       “Kids never cease to amaze me. If we could think like kids more often, this world might just be a better place.” [Amen!]
·       “What doesn't kill you defines you.” [Quoted from Geoffrey Talcott.]
·       “Jim is now a witness for the Lord and is alive to tell his story. It is the same in each of our journeys during life. We all have obstacles and feel like we’re not going to make it at times, but with God's help we can overcome every challenge. Just ask Jim!” [Quoted from Donna Philipbar.]
·       “With my brain injury I'm very forgetful.…”
·       “My memory isn't what it used to be: I forget things if I don't write them down… [I] occasionally say the wrong word – I might say 'bat' when what I want to say is 'hat.' Sometimes I forget words, and gaping holes open up in my conversations as I wrack my brain trying to find the word for what I want to say.”
·       “Sometimes my life feels like a tennis match, the ball bouncing back and forth between two sides: on one – I feel it a miracle to be here at all; on the other – it hurts to be me… my emotions go back and forth, up and down.”
·       “When I go shopping, I often give money to a cashier and get distracted by something…. This forgetfulness about money has become something of a problem….”
·       “I wish I felt as good as I looked.”
·       “… No matter how bad you think you have it, there are always many who have it much worse.”

Ting and I: A Memoir of Love, Courage, and Devotion, by [my editor] Douglas Winslow Cooper
This is about a husband's deep love for his sick wife. Reading this helped me be a better writer, and here are some quotes that did just that (or that I totally agree with):
·       “Staying in the here-and-now is a good way to keep from sadness or worry.”
·       “Writing a book is a scary task.”
·       “Our staff has told me horror stories of fist-sized bedsores down to the bone on nursing home patients who received inadequate care. By that stage the sores are deadly. Too many patients, too few staff, poor morale among the staff all can contribute. Once a bedsore starts to develop, it is admittedly a challenge to reverse.” [My friend Barbara's sister’s bedsore led to her death after her TBI.]
·       “If we are to count to 10 before speaking in anger, the quiet person is doing that already.”
·       “Even if what we do is not as good as it was years before, the years we have left can be quite precious.” [I reread the sentence over and over on a paper I wrote it on to make me feel better about the life I've lost.]

Do No Harm: Stories of Life, Death, and Brain Surgery, by Henry Marsh
This book is written from a British brain surgeon’s perspective – he has excellent quotes I've listed here, and even told the story of the patient who had the exact OCD behaviors I had (about clean hands) and needed brain surgery also.
·       “She probably knew already that the last thing you get in hospital is peace, rest, or quiet, especially if you are to undergo brain surgery next morning.” [How true!]
·       “Meningioma…. These particular tumours are always benign and usually grow quite slowly….” [The one I had.]
·       “Few – if any – of these patients would survive or emerge unscathed from whatever it was that had damaged their brains.” [I survived, not unscathed.]
·       “… eventually even benign tumours can prove fatal if they grow large enough, as the skull is a sealed box and there is only a limited amount of space in the head.” [My brain surgeon said, “Not much” when I asked him how much time I had left if the tumor hadn't been discovered. That was very scary to hear!]








I (Douglas Winslow Cooper) have been excerpting, weekly, material from this almost-final version of the fine book by Janet Johnson Schliff, M.S. Ed., which she wrote over a three-year period with some coaching and editing help from me, through my business, Write Your Book with Me.

Her memoir is now available in paperback and ebook formats from Outskirts Press  and amazon.com: 




                                              ###

BOOK TALKS AND SIGNINGS


More talks are being planned for the spring of 2019… she can be contacted at 845.336.7506 (home) or 845.399.1500 (cell).

Janet Johnson Schliff spoke at the Oblong Books Bookstore in Rhinebeck, NY, on Tuesday, February 6 at 6 p.m.

Janet was on WKNY Radio 1490 in Kingston, NY, on Thursday, March 1 at 9:10 a.m. 

Janet spoke at Barnes & Noble in Kingston, NY, on Saturday, March 3 at 1 p.m. 

Janet spoke at the Starr Library in Rhinebeck, NY, on March 6 
at 7 p.m. 

Janet spoke at the Golden Notebook Bookstore in Woodstock, NY, on March 17 at 2 p.m.

Janet spoke at the Morton Library in Rhinecliff, NY, on March 28 at 6:30 p.m. 

Janet spoke at RCAL in Kingston, NY, on April 3 at 4 p.m. [They gave her an impromptu book-launch party.]

Janet spoke at the Parkinson's Support Group at the Starr Library in Rhinebeck, NY, on April 4 at 2:30 p.m.

Janet spoke at the Stone Ridge Library in Stone Ridge, NY, on April 27 at 5:30 p.m.

Janet spoke at the Hurley Library in Hurley, NY, on May 4 at 6 p.m.

Janet spoke at the Kingston Library in Kingston, NY, on May 9 at 6 p.m.

Janet spoke at the Staatsburg Library in Staatsburg, NY, on May 14 at 7 p.m.

Janet spoke at the Clinton Community Library in Rhinebeck, NY, on May 31 at 6:30 p.m.

Janet spoke at the Mountain Top Library in Tannersville, NY, on June 9 at noon.

Janet spoke at the Gardiner Library in Gardiner, NY, on June 11 at 7 p.m.

Janet spoke at the Marbletown Community Center in Stone Ridge, NY, on June 20 at 6 p.m.

Janet was interviewed on radio station WTBQ-FM (93.5) on June 29 at 12 p.m.

Janet spoke at the Esopus Library in Port Ewen, NY, on July 13 at 7 p.m.

Janet spoke at the Pine Plains Library in Pine Plains, NY, on July 20 at 6 p.m.

Janet spoke at the Ulster Library in Kingston, NY, on July 23 at 5:30 p.m.

Janet spoke at the Northern Dutchess Bible Church in Red Hook, NY, on August 11 at 1 p.m.

Janet spoke at the Inquiring Minds Bookstore in New Paltz, NY, on September 6 at 7 p.m.

Janet spoke at the Adriance Library in Poughkeepsie, NY, on September 15 at 2:30 p.m.

Janet was interviewed on radio station WRIP-FM (97.9) on September 21 at 8 a.m.

Janet again spoke at the Mountain Top Library in Tannersville, NY, on September 22 at noon.

Janet spoke at the Enchanted Cafe in Red Hook, NY, on September 28 at 7 p.m.

Janet spoke at the Hyde Park Library in Hyde Park, NY, on October 4 at 7 p.m.

Janet participated in an Author Weekend at the Barnes & Noble in Poughkeepsie, NY, on October 14 from 11 a.m. to 3 p.m.

Janet spoke at the Tivoli Library in Tivoli, NY, on October 22 at 5:30 p.m.

Janet’s interview for the TV program Wake Up with Marci on the You Too America Channel aired on Monday, November 5, and Friday, November 9. It can now be found on the Internet.

Janet spoke at the Germantown Library in Germantown, NY, on November 7 at 6:00 p.m.

Janet participated in the Red Hook Middle School's College and Career Cafe in Red Hook, NY,  on December 19 at 10:30 a.m.


Janet will speak at the Poughkeepsie Brain Injury Support Group at the Poughkeepsie Galleria Mall in Poughkeepsie, NY, on Saturday, February 23 at noon. 

Janet will speak at the Stanford Free Library in Stanfordville, NY, on Saturday, March 9 at 10:00 a.m.

Janet will speak at the Howland Library in Beacon, NY, on Wednesday, March 20 at 1:00 p.m.

Janet will speak at the West Hurley Library in West Hurley, NY, on Saturday, March 23 at 1:00 p.m.

Janet will speak at the Dover Plains Library in Wingdale, NY, on Friday, April 5 at 6:00 p.m.

Janet will participate in an Author Talk at the Saugerties Library in Saugerties, NY, on Saturday, April 13 at 1:00 p.m.


Janet will speak at St. Timothy's Church in Hyde Park, NY, on Sunday, May 5 at 11:00 a.m.

Janet will speak at the Moffat Library in Washingtonville, NY, on Saturday, May 11 at 1:00 p.m.

More signings will be coming up. A fine feature about Janet by John DeSantos [845 LIFE] appeared in the Middletown Times Herald-Record on Monday, March 12, as part of Brain Injury Awareness Month. An article about her book was just published in the May 2018 Living Rhinebeck Magazine. An article about her book appeared in the May 14 Daily Freeman of Kingston, NY. and another in the Family Life section of the Poughkeepsie Journal on June 8th. The Millerton News published an article on Thursday, August 2, about her talk at the Pine Plains Library.