To assist families undertaking quadriplegic care at home, Douglas Winslow Cooper, Ph.D., husband of a quadriplegic multiple sclerosis patient, has established the Internet site http://www.quadriplegiccaresite.com, which will contain helpful information gleaned from his seven years of quadriplegic care for his wife, Tina Su Cooper.
The site begins as follows:
“Welcome to our site concerning quadriplegic care at home.Issues we will be discussing include: medical home care, private home care, special issues related to disabled spouses, being successful patient advocates, and --- in many cases --- our reflections concerning multiple sclerosis diagnosis and multiple sclerosis treatment.
“At the outset, note that this is not intended to be medical advice.
"I am a retired Ph.D. physicist, not an M.D. physician. I will be telling you what has and has not worked for my wife, Tina Su Cooper, who was paraplegic from 1994-2004 and quadriplegic, ventilator-dependent, fed and medicated through a gastric tube, from 2004 to the present. She has received successful quadriplegic care in our home with round-the-clock nursing paid for by my IBM retiree medical benefits for the past seven years.
“Quadriplegic care has medical, psychological, logistical, and financial implications.
"Pressure sores [bed sores] and respiratory and system infections, depression, lack of personnel or supplies or equipment, poverty or bankruptcy … all threaten the patient. All have serious consequences for the caregivers. All are topics appropriate to this site.”
For more information contact Dr. Cooper at (845) 778-4204 or firstname.lastname@example.org.