Short essays by Douglas Winslow Cooper, Ph.D., the author of TING AND I: A Memoir of Love, Courage and Devotion, published in September 2011 by Outskirts Press (Parker, CO, USA), available from outskirtspress.com/tingandi, Barnes and Noble [bn.com], and Amazon [amazon.com], in paperback or ebook formats. Please visit us at tingandi.com for more information.
Tuesday, April 30, 2019
Saturday, April 27, 2019
Review of SHATTERED DREAMS
This novel is based upon the true story of Charles and his actions after infidelity. There is a tremendous back story that is told of Charles life and the circumstances leading him to a bad decision. Like anyone’s life, there are so many defining moments that shape him. His father’s early death, sibling rivalry, raising a family are just some of the elements that shape him and his maturity.
It is an ambitious undertaking to provide a reader with enough information to follow someone’s life decisions. Many times the novel feels more like a case study and less like a novel. Emotion is discussed but not felt. With good effect we see the main character as objectively flawed.
Christopher Horne clearly conveys the myriad of elements that become part of our makeup. We understand why Charles is who he is. As the novel draws to a close we are provided an update on how Charles works on himself and his marriage. The epilogue contains a great guide on how to improve marriage in a Christian life.
We all err in our lives. Christopher Horne shows us that we can rise after falling and be better.
###
First review (and not by DWC) of this real-life novel published with help from my Write Your Book with Me endeavor.
Book is published by Outskirts Press, available from them or
from amazon.com or bn.com:
https://www.amazon.com/Shattered-Dreams-Rainbows-End-Inheritance-ebook/dp/B07FK97R14/ref=sr_1_14?keywords=shattered+dreams&qid=1556420250&s=books&sr=1-14
MANAGE NURSING CARE AT HOME, Custodial Care
APPENDIX 2
A good fraction of the work that needs to be done in caring for a patient in the home is “custodial,” the kind of care that might be needed for a healthy baby, rather than “nursing,” the kind of care that requires the training that nurses undergo that makes them medical professionals. This appendix is based on a summary of a book that provides excellent instruction in the elements of custodial home care. We strongly advise caregivers to obtain it.
In 2015, Tena L Scallan
published her excellent The Ultimate Compassionate Guide to Caregiving: A
Simple Blueprint for Dealing with Today’s Healthcare Crisis Combined with Years
of Wisdom and Sound Advice, filled with valuable advice, based on her
decades of experience running an agency providing care at home. It has been
available as a Kindle ebook for $2.99 and as a 407-page paperback for $14.30.
She notes that 1 in 8 Americans are 65 or older, and often children end up
taking care of their parents and even their grandparents at a time when both
husband and wife may well have jobs outside the home.
Scallan sees the need
for practical advice for caregivers, and her book provides it, centering on what
needs to be done and how to do it, rather than on how to manage it. It makes an
excellent companion to our own book.
Scallan starts her book
with a set of “absolutes for giving patient care”–never argue, instead
agree; don’t try to reason, instead divert; don’t shame them, instead distract;
don’t lecture, instead reassure; don’t say “remember,” instead reminisce; don’t
say “I told you,” instead repeat it; don’t say “you can’t,” instead do what you
can; don’t command/demand, instead ask/model; don’t condescend, instead
encourage/praise; don’t force, instead reinforce.
Scallan lists these
principles of care:
safety for yourself and your patient; privacy; dignity; communication,
explaining everything as you go along; independence; infection
control; being a good listener; being trustworthy; dependability;
anger management; managing your own emotions.
Scallan’s fine book has the following chapters:
§
Communication
§
Hygiene
and Personal Care
§
Medication
§
Patient
Care Records
§
Vital
Signs
§
Caring
and Maintaining a Healthy Environment
§
Nutrition
§
Body
Mechanics and Transferring
§
Infection
Control
§
Safety
§
Medical
Emergencies
§
Emotions
§
Legalities
§
Insurance
§
Expenses
§
Informational
Documentation Planner
§
Resource
Guide
§
Glossary
We will summarize
Scallan’s advice, chapter by chapter. When our patient was paraplegic, needing
the care provided by a home health aide rather than by a nursing staff, this
book would have been exactly what was needed. In several cases, we employed
aides who were experienced but lacked formal training, and the insurance
company required that we have a nurse certify that they were able to perform
the necessary care-giving activities. Having this book available for their
instruction would have been a blessing. Much of the care Scallan describes is
needed by patients who are receiving skilled nursing care as well.
Communication
Communication is more
than speaking and listening, Scallan notes. Caregivers must give considerable
thought to how they are going to present their message to their patients.
Getting to know your patient helps. Speaking loudly and slowly and face-to-face
is also advisable. Maintain eye contact; ask questions to be sure that the
messages are being understood.
Although the patients
are often as dependent as children, usually their mental abilities are much
greater, so it’s important not to be patronizing, not to talk down to them.
Empathize with their loss of control over familiar aspects of their lives. Keep
it as simple as practical, changing the subject if you note frustration.
Realize memory may not be as good as at once was.
Hygiene and Personal Care
There can be a variety
of reasons why the patient may be unable to perform many of the usual tasks for
personal hygiene. The caregiver has got to supply these, with patience and
consideration, maintaining the dignity of the patient. Scallan gives detailed
instructions here for mouth care, bathing, back rubs, manicures and pedicures,
hair care, shaving, glasses and contact lenses, hearing aids, dressing and undressing,
and adult diapers and associated skin care.
Medication
Medications include
chemicals that require a doctor’s prescription and others that are available
without one, “over-the-counter (OTC)” medications. Scallan emphasizes the need
to follow the medical instructions scrupulously, including the amounts, the
timing, the routes of supplying, careful medical record keeping, expiration
dates, warnings, patient reactions to the meds.
In boldface capital letters Scallan issues
the following alert however:
MEDICATION ADMINISTRATION – MUST BE DONE BY A
FAMILY MEMBER, LICENSED HEALTH CARE
PROVIDER OR NURSE. CAREGIVERS CAN ONLY ASSIST WITH MEDICATIONS ALREADY PREPARED
BY THE FAMILY MEMBER, HEALTHCARE PROVIDER OR NURSE. HOWEVER, A NURSE MAY BE REQUIRED IF THE PERSON RECEIVING CARE IS UNABLE TO TAKE THEIR MEDICATION WITHOUT
ASSISTANCE.
This warning is for
practical and legal reasons, and it is one of the ways in which custodial care
is distinguished from skilled nursing care. Tips are provided for the
healthcare workers for the administration of the medications already prescribed
and prepared. Eye, ear, and nose drops need careful techniques, too, given by
Scallan. All medications should be recorded: time, date, medication, dose, how
given, and the caregiver initials.
Patient Care Records
As Scallan notes,
“every patient has a care record. This is a permanent written record containing
confidential information that serves many purposes:” documentation of the work
done, progress, communication among caregivers, basis for evaluating success of
the plan, making available information as history for later examination,
providing a basis for examining billing.
Detailed guidelines for
head-to-toe examination are given. These include observation of appearances and
of performance. The ability to perform the routine Activities of Daily Living
is noted, as well as the need for assistive equipment.
Vital Signs
The following are
defined in Scallan’s section on vital signs: temperature, fever, thermometer,
pulse, respiration, blood pressure; the normal ranges for many of these are
given, along with the materials and methods used in measurement. Helpfully, the
values of some of these measurements that would necessitate contacting the
doctor’s office are listed. These include temperature, pulse rate, blood
pressure, and respiration rate. Scallan emphasizes the necessity of care and
cleanliness in taking the patient’s vital signs.
Caring and Maintaining a Healthy Environment
To prevent chemical
contamination and to help reduce the risk of infection, the home itself must be
kept clean. A wide variety of cleaning supplies will be required. Both
disinfecting and cleaning solutions must be employed. The kitchen and dishes
and silverware must be kept scrupulously clean. Changing the bed linens while
the bed is occupied requires special technique. Laundry can present a
challenge. Advice is presented for cleaning urine and fecal stains.
Nutrition
For home care given by
family and home care aides, nutrition will be much the same as done for the
family routinely, unless special circumstances apply. Scallan provides valuable information,
summarizing much dietary/nutritional material.
Certain handicaps, such
as blindness or difficulty with using the hands or arms, will require special
feeding approaches.
During periods of
skilled nursing care, everything that is ingested will be determined in
conjunction with the medical team.
Body Mechanics and Transferring
Moving the patient,
even moving the equipment associated with patient care, is done more safely if
attention is given to technique. Scallan gives tips for exercises by the
patient as well as step-by-step instructions for proper handling of the patient
during movement from one area to another, such as from bed to floor or from
chair to standing up. Back injuries are endemic in the caregiving professions,
so proper technique, good body mechanics, is essential.
Bedridden patients
require frequent movement to prevent bedsores and promote independence.
A wide variety of
assistive devices is available, and their use is well described here.
Infection Control
Germs
are everywhere, including your body, your clothes, your home, household
surfaces, etc. Cleanliness is the
first-line of defense, especially hand washing. In some cases, gloves and face
masks may be required.
Safety
Scallan focuses
on “how to reduce your chances of becoming a crime victim.” She includes
various forms of physical attack and scams.
Medical Emergencies
Scallan provides a
strong disclaimer at the beginning of this section, as dealing with medical
emergencies presents risk to the caregiver as well as to the patient. No
attempt will be made here to summarize her information, for the same reasons.
Emotions
Emotions have developed
partly to enhance our survival chances: fear, need, loneliness, even love play
roles. Decision making is aided and harmed by emotions; you must care, but not
be paralyzed with fear. Emotions help us set boundaries between ourselves and
others, with both positive and negative impacts. Emotions assist our
communications. We need both happiness and occasional sadness to feel alive.
They help us bond with others.
Managing negative
emotions can be aided by identifying them clearly and then determining whether
the feeling is healthful. If not, ask what would help. In communicating them:
don’t be dramatic, nor let them build up, present them succinctly, avoiding
placing blame, and if possible try to diffuse confrontation by offering the
other person the opportunity to “safe face,” to back down gracefully.
Disappointment arises when reality confronts illusions. Bitterness is extreme
disappointment. The patient’s expectations may have been quite unrealistic,
however, as may have been the caregiver’s. Discouragement is self-defeating,
though understandable.
Positive
emotions include hope, love, affection, friendliness, resiliency, forgiveness,
and understanding. Help the patient to focus on these, if possible.
Sometimes, laughter is
the best medicine.
Legalities
Useful legal documents
include: letter of instruction, living will, power of attorney, reverse
mortgage, long-term care insurance policy, do not resuscitate (DNR ) order…and we end this list to quote Scallan,
as we agree with her concern, “Inconsistent application of DNR orders means some patients get
less-than-optimal care once providers are aware of the presence of a DNR order. There still needs to be more study on
this issue, but some health-care providers will even disregard basic care to
patients with DNR orders. Because
of these issues, for anything other than a terminal diagnosis – like cancer or
some end-stage chronic conditions – getting a DNR
order may not be the right decision.” Neither of our two home-bound patients
had a DNR order.
Insurance
Common options for
medical insurance include Medicare Part A, which is hospital insurance;
Medicare Part B, which is insurance for most other medical services, Medicare
Part C, sometimes called Medicare Advantage, which allows you to receive your
care through a provider organization; and Medicare Part D, prescription drug
coverage. We discuss these elsewhere in our book. Besides these options there
are various private insurance plans, including those provided by businesses and
other organizations. Disability insurance can be viewed as a form of medical
insurance. Related forms of compensation include Veterans’ benefits and
Workman’s Compensation. Scallan helpfully provides much detail on all of these.
Expenses
Scallan gives extended
advice on managing money during retirement.
Informational Documentation Planner
Scallan presents a
detailed form that goes into specifics on recording essentials related to:
emergency information, important contact numbers, healthcare contacts, family
and friends, services, and numbers and access codes, medical history, family
genealogy, bank accounts, foreign bank accounts, automatic bill paying,
personal loans, savings certificates, savings bonds, stock certificates, safe-deposit
boxes, cash on hand, home safe, credit union, pension, retirement account, and
duties, will, trust, living will, durable power of attorney, durable power of
attorney for medical care, letter of instruction, religious affiliation,
funeral instructions, donor arrangements, autopsy arrangements, cemetery plot,
Social Security information, military discharge papers, income tax filings,
passport, driver’s license, birth certificate, adoption papers, naturalization
papers, marriage license, divorce decree, credit cards, Medicare/Medicaid,
health insurance policies, long-term care insurance policy, life insurance
policy, disability insurance policy, homeowners insurance policy, auto/vehicle
insurance policies, vehicle ownership, real estate ownership, school records,
employment history, pet history, with some detailed sub entries for all of
these.
Resource Guide
Scallan gives the address and phone numbers and
a brief description for each of the following:
§ Administration on Aging
§ Aging Network Services
§ American Association of
Homes for the Aging
§ American Association of
Retired Persons (AARP)
§ American Geriatrics
Society
§ American Health Care
Association
§ American Society on
Aging
§ B’nai B’rith
International
§ Catholic Charities
§ Catholic Golden Age
§ Children of Aging
Parents
§ Disabled American
Veterans
§ Episcopal Society for
Ministry to the Aging
§ Foundation for Hospice
and Home Care
§ Gray Panthers
§ National Association
for Home Care
§ National Association of
Area Agencies on Aging
§ National Association of
State Units on Aging
§ National Council on the
Aging
§ National Hispanic
Council on Aging
§ National Hospice
Association
§ National Institute on
Aging
§ National Shut-in
Society
§ Older Women’s League
§ U.S. Office of Disease
Prevention and Health Promotion
§ United Way of America
§ Veterans Administration
§ Volunteers of America
Scallan follows this
with similar information on more organizations, categorized by their specific
areas of concern: Alzheimer’s disease, arthritis, cancer, caregiving, dental
health, diabetes, foot care, health, hearing impairment, high blood pressure,
housing/long-term care, incontinence, legal issues, medications, nutrition,
osteoporosis, safety, stress, stroke, vision. Next, she gives addresses and
telephone numbers for the state offices of aging, from Alabama to Wyoming.
The last third of
Scallan’s The Ultimate Compassionate Guide to Caregiving is over
one-hundred pages of Glossary, giving in-depth definitions of relevant terms.
To repeat, this is an
extraordinarily fine book, which makes a fine companion to ours. Scallan’s is
directed primarily toward how to provide custodial care, generally given
by those who are not nurses, and ours deals primarily with managing nursing
care. In the home situation, custodial care may be being supplied by the
family even as nursing care is being supplied by nurses, so that both books may
be of use.
GOOD GRIEF, "My Story"
On September 1, 2014, at 12: 25 a.m., I lost my husband, friend, and partner of 46 years. He was also a great dad to our daughter for 45 of those years. He was 69 years old and had enjoyed many years of retirement while I continued working. During this time, our roles shifted, and he took over the household tasks: doing the dishes, clothes washing, bed making, banking, and was the financial manager and cheerleader for me and my daughter.
My husband passed away in bed as
he slept right next to me. The only thing that woke me was the snoring for
which I turned and shoved at his shoulder — annoyed that I was losing sleep. I
got no response and immediately became alarmed. I leapt from my side of the bed
to run to the other side, to shake him and try to rouse him…with no success.
My daughter ran from her bedroom
and started CPR while I called 911.
We are both nurses, so we did our
routine CPR activity (pushing on his chest to help his heart beat and breathing
into his mouth to bring air to his lungs), but this time with a more personal
impact.
The emergency medical team (EMTs)
arrived quickly, but it seemed to take forever. Time goes slowly during
critical events such as this. I remember running down the stairs and out the
door to flag down the team; the numbering of our town homes does not follow a
logical order to enable it to be easily found. They took over the job of trying
to save Fred’s life, but he did not respond to their efforts.
They could not get air into Fred’s
lungs nor a breathing tube inserted to use as an airway, all bad signs. I
requested a pause in CPR at one point to check his heart monitor (for heart
rhythm) and breathing — there was no response. No heartbeat, no breathing — my
husband was gone.
My daughter and I looked deep into
each other’s eyes and nodded in agreement, deciding to honor my husband’s
wishes of no heroic treatment in cases like this, as he had stated many times
in the past. A hard decision to make when we could see him lying there.
We knew he was already gone, but
we still wanted him back with every part of our being. When we shared our
decision to stop CPR with the EMT leader, she contacted the hospital MD, and
the lifesaving efforts ceased.
The coroner was also contacted,
routine for deaths at home. We were lucky we did not have an obstacle with the
coroner to deal with… my husband was under the care of a physician, and his
medical history was evident.
When I was asked about which funeral home I would be using, I
could not think of an answer. I criticized myself for not knowing the name of
the funeral home our family used. I
should know this, I told myself.
Then I remembered its location.
The EMT leader knew the name and the phone number. She contacted the funeral
home for us and gave us the time they would arrive to pick up the body. We said
our goodbyes and thanked them for all their care.
The hardest part of this was to
wait in the stillness after they all left — just the three of us: wife,
daughter and the body of our loved one lying in the bed upstairs.
We went upstairs to talk to him
and say our last goodbyes, to touch, to grieve together and to cry. I kissed
his forehead and stroked his face, knowing that this would be the last kiss and
last touch.
I was crushed. This event was
unexpected — a total shock. We had survived past stressful events with him,
when he had strokes and seizures, but he always recovered. This time was different,
he was gone from us forever. We were in shock and felt numb. The loss of Fred’s
body, spirit, and energetic presence was so profound.
As I’ve mentioned, I am a nurse
and worked in critical care at one time in my career for 12 1/2 years; I have
been at the bedside when death came quietly, sometimes not so quietly, to claim
a patient — another person’s loved one. I have assisted family members doing
postmortem care at the bedside after a death.
I have cared for critically ill
adults and even “predicted” that they would die on my shift. Although I kept
this to myself, it enabled me to suggest that the family member should stay a
while longer. I have allowed the family to be present during the “code” of
their family member, but only if this was their wish. I have supported nursing
students through the patient’s dying experience, including postmortem care.
Even after all this, I was not
prepared when death took my husband. I was still faced with the same questions
that I helped so many others to find answers to when they faced the loss of
their loved one: What to do first? Whom to contact? What about work? How is
Bonnie, my daughter, taking this?
So many decisions to make…it was
overwhelming. The only thing I could do was one thing at a time: one breath,
one step — and then another.
The first week, we did all the
things that needed to be done immediately: contact family and close friends,
sharing the loss as well as the plan to honor his wishes.
First and foremost, we wanted to
honor his wishes to be cremated and have his ashes distributed at Daytona
Beach, Florida. So, we made the arrangements with the funeral home for
cremation, death certificates, payment, etc. Fred also wanted no viewing or
memorial.
After this, we packed up and drove
from Pennsylvania to Florida. My daughter drove the whole way down and back. We
spent some time in silence. We also rehashed the details of his death, trying
to understand what happened, whether we missed something, or if we could have
done something more.
We reminisced about the good times and the memories. We cried sometimes and used up many tissues. Other times, we shared smiles and laughter.
We reminisced about the good times and the memories. We cried sometimes and used up many tissues. Other times, we shared smiles and laughter.
It took two days to arrive in
Florida. When we rode into Daytona Beach, the first sight we saw was a rainbow
over the ocean. We spotted this as it was developing, and we pulled the car
into a parking lot to take a few photos. It seemed a sign of hope and
confirmation that we were doing what we were supposed to do, bringing him to
the place he loved.
We’ve been to Daytona on vacation
for many years, and it felt like coming home. This time we stayed in a motel we
had never stayed in before. We weren’t ready to revisit our usual
accommodations.
We spent two days thinking about
what to do next and visited some of the favorite eating/drinking places he
loved. When we shared our loss with one of the waitresses at a place we frequented,
she hugged us both, with tears in her eyes. We felt comforted. She shared the
impending loss of her grandmother; she was glad to talk to someone who knew
about loss…a shared experience.
Finally, we decided to have our
ritual ceremony at the beach near the lighthouse he loved to climb. He could no
longer make the climb the last couple of years due to his health. We did this
last act of love for him with a celebration on the beach — just the two of us.
My daughter created a sand angel next to the heart we traced in the sand with
his name, the dates of birth and death, flowers from his mother and sister, and
his favorite sandals. A cloud in the distance out in the ocean had visible rain
pouring down — as though the universe cried with us, sharing our pain. We have
a photo of this, including the sand display; we felt Fred’s spirit come to rest
in the place he loved so much.
As we stood side-by-side,
knee-deep in water, we spilled his ashes into the Atlantic Ocean, surprised at
what happened.
“They are sinking,” I said. “I thought they were supposed to
float.”
No one tells you that these ashes
are different than the typical ashes from a fireplace. These ashes were the
bone fragments of what remained of Fred — a weight of over 9 pounds.
Another way we paid tribute to my
husband was to visit his favorite place in Daytona Beach — the Ponce De Leon
Inlet Lighthouse. We arranged for a memorial brick to be placed on this
historic site’s walkway in his memory. (Weeks later, we received a small
remembrance brick to keep with us.)
As we did this, we remembered our
last trip to Daytona as a threesome, just a little over three months before his
death. The first week he spent with Bonnie and her friend, who left at the end
of the week.
I followed, a week later, to join Bonnie and Fred. We had a great time as usual. Bonnie and I didn’t think we’d return so soon and under such sad circumstances. After a week away from home, taking care of this sad business, we returned to our new reality: two, rather than three of us. The next week we spent comforting each other, doing routine chores and lots of paperwork resulting from the loss of a spouse.
I followed, a week later, to join Bonnie and Fred. We had a great time as usual. Bonnie and I didn’t think we’d return so soon and under such sad circumstances. After a week away from home, taking care of this sad business, we returned to our new reality: two, rather than three of us. The next week we spent comforting each other, doing routine chores and lots of paperwork resulting from the loss of a spouse.
Looking back, I remember well our
last day as husband and wife. We spent the day together doing errands, then
visited the reservoir near us to check the water level. We have water stock,
and this was something he kept track of, as well as the share price. I wasn’t
feeling very well and did not go out to dinner when he asked me to, so he
visited his favorite off-track betting site, watched a few horse races, and had
a bite to eat. Things progressed as usual at home. We never thought these would
be our last moments together.
I was glad that our whole last
week together was filled with wonderful memories like this. He ate all the
special foods he liked (courtesy of his daughter), and he went to the places he
loved to go. Still, we wish we could have had more time, did things
differently, said things more lovingly, been better, etc.….
The door closed on this chapter of
my life, joined together with my husband. Another door opened, forcing me to
step through alone, cautiously and reluctantly into the unknown, not knowing
what to expect, nor how to survive.
So, I tried to re-establish a life
of normalcy in a life suddenly, drastically changed through the loss of a life
force that had accompanied me throughout most of my life. I felt this loss of
Fred keenly at first, but I tried hard to “put on a good front,” “to fake it
till I made it.” Fortunately, I was supported by friends, colleagues, and even
strangers I met who somehow had heard the news of the loss. They sent cards,
called by phone, made personal visits. These were frequent at first, but soon
tapered off. I did not live alone nor need to pick up the pieces of a broken
life by myself. I was lucky that my daughter lived with me, and we had a shared
experience to bind us as we moved forward.
I was also fortunate that I had a
deeper strength that I could draw from — my faith. Some call this a belief in
God, while others may call this source of strength by another name.
To sustain this normalcy, I
continued working from September, when Fred died, until I retired in January.
This time was fraught with anxiety, fear, conflict, love, comfort and caring —
to name only a few emotions. As time went by, I was progressively left to my
own devices, often adrift, wondering what to do.
My daughter had planned a vacation
to Hawaii in January with a friend and decided for me to come along, so I would
not be left alone at home. I struggled on this vacation, feeling guilty about
going, yet happy for the opportunity. I kept wondering how my husband would
have enjoyed this or that. Guilt followed me everywhere, as the learning and
growing process continued.
My daughter and I have gone on
many learning trips in the past and are already nurse coaches. I love learning.
My daughter and I signed up for a course on Transpersonal Coaching in New York
for April — only seven months after our loss.
While there, we practiced
awareness exercises, just as we had in other courses, but this time it was
different. One exercise we did was to be guided to seek our wisdom figure to
answer a question we had. I had trouble deciding on my question, so I started
the experience with just an open mind and heart.
As I got to the part of the experience
where I was to meet my wisdom figure, I saw a blurred figure moving toward me,
with no specific shape at first. I saw the form changing, becoming white and
slender. I kept watching. More details evolved, yet not so many that a face was
recognizable.
When the figure was close enough
to touch, I felt extreme longing. I reached out with both arms and turned my
head to the left to lay it on the chest of the figure — an action I’ve done
frequently in the past when hugging my husband. My hands seemed to bump into
white, wing-like structures that enfolded me. As I embraced the figure, he
embraced me.
The figure spoke to me, “It’s going
to be OK.”
I had been wanting a hug from my
husband, and I had gotten it. I fought accepting this at first, then let go of
my unworthiness and was grateful it had happened.
The healing continues but is not
over.
It’s been over three years since
the loss of my husband — but it feels like only yesterday at times. In one
sense, time froze that fateful day; and yet, time still passed, 24 hours in
each day ticking away as usual. Days moved into weeks, then into months, and
now years.
I had no control over time.
Neither will you — even if you try. I continue to take a few steps forward and
then slip a few steps backward in my healing journey. Sometimes, I get stuck
for a while. Other times, I make much progress and growth. The growth phase has
been scary. I often wanted to stay in the past, more comfortable, and less
daunting than moving forward. But, forward I moved each minute, each hour, each
day, continually.
I asked, “Why?”
I wanted one more day. I was
angry, sad, confused, lost and lonely. As time passed, the sorrow eased. Then
came the holidays, special events, and other things that exposed my feelings of
grief and loss again. I keenly felt the heartache and relived the pain, only to
work through the healing…yet again and again.
You see, I went through the
grieving process in my own unique way, as you will, too. Guess what? I learned
a lot. I am grateful for my daughter’s invaluable love and caring. Bonnie is a
beautiful, empathetic young woman who is also going through this journey of
grief and loss in her own special way.
You and I, we are not alone. I am
not different from anyone else in having to experience sorrow. I have a story
of loss. Everyone eventually does.
In this book, I have shared some of the experiences that
helped me heal on my journey through grief and loss. I hope you find comfort in
the stories and use some of tips I discovered to help you when you are stuck on
your healing journey and find it hard to move forward.
Douglas Winslow Cooper, PhD
Perhaps the easiest way to obtain a copy of her book, published by Outskirts Press, is through this Amazon link:
###
With her permission, I will be serializing here nurse Cheryl Barrett's valuable book on transcending grief. I had the pleasure of being her coach and editor through my Write Your Book with Me enterprise.
Douglas Winslow Cooper, PhD
WHAT EVER HAPPENED...? "Appendix 13. Resume"
Janet A. Schliff
68 Penstock Lane
Lake Katrine, NY 12449
68 Penstock Lane
Lake Katrine, NY 12449
Profile
Versatile and passionate
professional with significant “hands-on” experience in the Life Skills Special
Education field. Particular expertise in implementing techniques targeting
individuals’ different strengths and learning styles. Positions held have
required the ability to create a truly unique learning experience for all my
students with a strong emphasis on practical, daily life skills. Highly
effective and direct communicator, able to develop trust and build solid
relationships with students of varying ages, abilities, and diagnosis’. Proven
ability to coordinate and link individuals with a variety of community services
as a part of a cohesive team.
Professional Experience
Life Skills Special Education Teacher
(1:12:1)
Rondout Valley Central School District (2003-2007)
Worked directly with mentally
challenged adolescents ages 12-15 in a full range of practical, Life Skills
areas… Developed and lead sessions in food preparation, budgeting,
housekeeping, and personal hygiene… Incorporated field trips to local stores
and restaurants to reinforce learned skills… Emphasized proper manners, proper
ordering, shopping fundamentals, and cash flow management with teens… Assisted
students with a variety of behavioral and social skills… Trained and supervised
teaching assistants and teacher aides.
·
Maintained a weekly laundry schedule with class
·
Facilitated recipes on food preparation and
party hosting
·
Organized Christmas caroling trips to a local
nursing home
Life Skills Development Program Special
Education Teacher (1:12:1; 1:8:1)
Management Needs Special Education Teacher
(1:6:1)
Ulster BOCES (1989-2003)
Taught children labeled mentally
handicapped and emotionally disturbed ages 6-15 in all Life Skills and
curriculum areas… Supervised teacher assistants and aides… Implemented various
behavior management plans… Organized field trips throughout Ulster County…
Trained in TRIBES (behavioral cooperative learning program)… Conducted several
songs sung at concerts and moving up ceremonies… Directed various play
productions.
·
Coordinated Ulster BOCES Special Olympics Track
and Field
·
Implemented the BOOK IT Reading Incentive
Program for the district
·
Instituted the Sparkly Crest Dental Health
Program for the district
·
Initiated the Ulster BOCES Running Club (Sophie
Finn Extension)
Self-Contained Special Education Teacher /
Resource Room Teacher
Pine Plains Central School District (1982-1989)
Taught children labeled mentally
handicapped, emotionally disturbed, and/or learning disabled, ages 6-14 in
curriculum and Life Skills areas… Supervised teacher aides… Planned numerous
field trips throughout the Hudson Valley… Organized and chaperoned overnight
camping/educational trips… Directed various play productions… Conducted several
songs sung at winter/spring concerts.
·
Coordinated a school-wide fundraiser for the Gannett
House of Poughkeepsie, an emergency housing shelter for homeless families
·
Initiated the Pine Plains Special Olympics Track
Team and acted as Training Club leader for 3 Special Education classes
·
Developed a swimming program and conducted
lessons for 2 Special Education classes
·
Implemented a breakfast and dental program for
students
·
Coordinated a community spaghetti supper as a
classroom fundraiser
Education
State University of New York at New Paltz
Master of Science Degree in Education: Special Education (1985)
·
Grade Point Average: 3.97
State University of New York at Plattsburgh
Bachelor of Science Degree in Special Education, K-12 (1982)
·
Grade Point Average: 3.67
Certifications
New York State Permanent Certification,
Special Education (K-12)
Awards
The 1992 Dean’s Award for Excellence in
Teaching: Ulster County
State University of New York at New Paltz and Mid-Hudson School Study
Council (1992)
Who’s Who in American Education
The National Reference Institute (1992-1993 Third Edition)
Publications
Co-authored with Dr. Spencer
Salend of the State University of New York at New Paltz an article entitled, “An Examination of the Homework Practices of
Teachers of Students with Learning Disabilities,” Journal of Learning Disabilities, December 1989: Volume 22, Number
10, pp. 621-623.
Co-authored with Dr. Spencer
Salend of the State University of New York at New Paltz an article entitled, “The Many Dimensions of Homework,” Academic Therapy, March 1988: Volume 23,
Number 4, pp. 397-403.
·
Both articles were presented at the National CEC
Conference, San Antonio, Texas, (4/93)
Activities
Training Club Coordinator/Advisor
(1992-2005)
Ulster County Special Olympics; Ulster BOCES Special Olympics—Track and
Field, New Paltz, NY
Fundraising Chairperson (1997-1999)
Ulster County Special Olympics, Kingston, NY
Training Club Coordinator (1983-1990)
Dutchess County Special Olympics; Pine Plains Special Olympics—Track
and Field, Pine Plains, NY
Superintendent of Sunday School
Third Lutheran Church, Rhinebeck, NY
Whole Language Presentations and Courses
Taught
Whole Language for
the K-3 Special Education and Regular Education Class
30-hour/15-hour In-service Courses
Fall 1990 to Fall 1997
Ulster and Dutchess BOCES-SETRC Office
Mid-Hudson Teachers Center
New Paltz and Poughkeepsie, NY
An Introduction to
Whole Language and the Special Education Classroom
Undergraduate Course Workshop
April 1999
Marist College, Poughkeepsie, NY
Classroom
Celebrations
Mid-Hudson Reading Council
Thirteenth Annual Fall Conference
October 1996
Vassar College, Poughkeepsie, NY
Classroom
Celebrations
Staff Development Workshop- Brinkerhoff Elementary School
December 1995
Wappingers Falls Central School District
Wappingers Falls, NY
Classroom
Celebrations
Staff Development Workshop – Gayhead Elementary School
March 1995
Wappingers Falls Central School District
Wappingers Falls, NY
Evaluation and
Assessment in the Whole Language Classroom
Staff Development Meeting
February 1995
Pawling Central School District
Pawling, NY
Implementing Whole
Language
TAWL Conference
September 1992
SUNY New Paltz
New Paltz, NY
Implementing Whole
Language
Staff Development Meeting
March 1992
Kingston City School District
Kingston, NY
An Introduction to
Whole Language
Staff Meeting- Sophie Finn Elementary School
June 1991
Ulster County BOCES
Kingston, NY
Basics of Whole Language-
Make and Take- Primary
Ulster County Staff Enrichment and Educational Development Conference
April 1991
Rondout Valley Middle School/High School
Accord, NY
Reading – An
Invitation to Many Worlds
Mid-Hudson Reading Council
Seventh Annual Fall Conference
October 1990
Vassar College, Poughkeepsie, NY
Implementing Whole
Language
Superintendent’s Conference Day
March 1990
Ulster BOCES
New Paltz, NY
A Look at Whole
Language
Superintendent’s Conference Day
January 1990
East Ramapo Central School District
Spring Valley, NY
Implementing Whole
Language
NYS Second Annual Whole Language Conference
October 1989
Rochester Convention Center
Rochester, NY
[Thanks to Mikaela O’Brien for helping Dr. Cooper and
me by typing up this document when he couldn’t, because he was caring for his
ill wife.]
I (Douglas Winslow Cooper) have been excerpting, weekly, material from this almost-final version of the fine book by Janet Johnson Schliff, M.S. Ed., which she wrote over a three-year period with some coaching and editing help from me, through my business, Write Your Book with Me.
Her memoir is now available in paperback and ebook formats from Outskirts Press and amazon.com:
###
BOOK TALKS AND SIGNINGS
More talks are being planned for the spring of 2019… she can be contacted at 845.336.7506 (home) or 845.399.1500 (cell).
Janet Johnson Schliff spoke at the Oblong Books Bookstore in Rhinebeck, NY, on Tuesday, February 6 at 6 p.m.
Janet was on WKNY Radio 1490 in Kingston, NY, on Thursday, March 1 at 9:10 a.m.
Janet spoke at Barnes & Noble in Kingston, NY, on Saturday, March 3 at 1 p.m.
Janet spoke at the Starr Library in Rhinebeck, NY, on March 6 at 7 p.m.
Janet spoke at the Golden Notebook Bookstore in Woodstock, NY, on March 17 at 2 p.m.
Janet spoke at the Morton Library in Rhinecliff, NY, on March 28 at 6:30 p.m.
Janet spoke at RCAL in Kingston, NY, on April 3 at 4 p.m. [They gave her an impromptu book-launch party.]
Janet spoke at the Parkinson's Support Group at the Starr Library in Rhinebeck, NY, on April 4 at 2:30 p.m.
Janet spoke at the Stone Ridge Library in Stone Ridge, NY, on April 27 at 5:30 p.m.
Janet spoke at the Hurley Library in Hurley, NY, on May 4 at 6 p.m.
Janet spoke at the Kingston Library in Kingston, NY, on May 9 at 6 p.m.
Janet spoke at the Staatsburg Library in Staatsburg, NY, on May 14 at 7 p.m.
Janet spoke at the Clinton Community Library in Rhinebeck, NY, on May 31 at 6:30 p.m.
Janet spoke at the Mountain Top Library in Tannersville, NY, on June 9 at noon.
Janet spoke at the Gardiner Library in Gardiner, NY, on June 11 at 7 p.m.
Janet spoke at the Marbletown Community Center in Stone Ridge, NY, on June 20 at 6 p.m.
Janet was interviewed on radio station WTBQ-FM (93.5) on June 29 at 12 p.m.
Janet spoke at the Esopus Library in Port Ewen, NY, on July 13 at 7 p.m.
Janet spoke at the Pine Plains Library in Pine Plains, NY, on July 20 at 6 p.m.
Janet spoke at the Ulster Library in Kingston, NY, on July 23 at 5:30 p.m.
Janet spoke at the Northern Dutchess Bible Church in Red Hook, NY, on August 11 at 1 p.m.
Janet spoke at a writers' group in Rosendale, NY, on August 30 at 2 p.m.
Janet spoke at the Inquiring Minds Bookstore in New Paltz, NY, on September 6 at 7 p.m.
Janet spoke at the Adriance Library in Poughkeepsie, NY, on September 15 at 2:30 p.m.
Janet was interviewed on radio station WRIP-FM (97.9) on September 21 at 8 a.m.
Janet again spoke at the Mountain Top Library in Tannersville, NY, on September 22 at noon.
Janet spoke at the Enchanted Cafe in Red Hook, NY, on September 28 at 7 p.m.
Janet spoke at the Hyde Park Library in Hyde Park, NY, on October 4 at 7 p.m.
Janet participated in an Author Weekend at the Barnes & Noble in Poughkeepsie, NY, on October 14 from 11 a.m. to 3 p.m.
Janet spoke at the Tivoli Library in Tivoli, NY, on October 22 at 5:30 p.m.
Janet’s interview for the TV program Wake Up with Marci on the You Too America Channel aired on Monday, November 5, and Friday, November 9. It can now be found on the Internet.
Janet spoke at the Germantown Library in Germantown, NY, on November 7 at 6:00 p.m.
Janet participated in the Red Hook Middle School's College and Career Cafe in Red Hook, NY, on December 19 at 10:30 a.m.
Janet spoke at the Poughkeepsie Brain Injury Support Group at the Poughkeepsie Galleria Mall in Poughkeepsie, NY, on Saturday, February 23 at noon.
Janet spoke at the Stanford Free Library in Stanfordville, NY, on Saturday, March 9 at 10:00 a.m.
Janet spoke at the Howland Library in Beacon, NY, on Wednesday, March 20 at 1:00 p.m.
Janet spoke at the West Hurley Library in West Hurley, NY, on Saturday, March 23 at 1:00 p.m.
Janet spoke at the East Fishkill Library in Hopewell Junction, NY, on Monday, March 25 at 6:30 p.m.
Janet spoke at the Grinnell Library in Wappingers Falls, NY, on Saturday, March 30 at 10:30 a.m.
Janet spoke at the Dover Plains Library in Wingdale, NY, on Friday, April 5 at 6:00 p.m.
Janet participated in an Author Talk at the Saugerties Library in Saugerties, NY, on Saturday, April 13 at 1:00 p.m.
Janet spoke at the Red Hook Community Center in Red Hook, NY, on Wednesday, April 24 at 5:00 p.m.
Janet will participate at the New Creations Gift Shop Author Event in Fishkill, NY, on Saturday, May 4 at 12:00 p.m.
Janet will speak at St. Timothy's Church in Hyde Park, NY, on Sunday, May 5 at 11:00 a.m.
Janet will speak at the Moffat Library in Washingtonville, NY, on Saturday, May 11 at 1:00 p.m.
Janet will speak at the Beekman Library in Hopewell Junction, NY, on Saturday, May 18 at 10:30 a.m.
Janet will speak at the Pleasant Valley Library in Pleasant Valley, NY, Tuesday, May 28 at 6 p.m.
Janet will speak at the Blodgett Memorial Library in Fishkill, NY, on Saturday, June 8 at 1:00 p.m.
Janet will speak at the Plattekill Public Library in Modena, NY, on Saturday, June 20 at 1:00 p.m.
More signings will be coming up. A fine feature about Janet by John DeSantos [845 LIFE] appeared in the Middletown Times Herald-Record on Monday, March 12, as part of Brain Injury Awareness Month. An article about her book was just published in the May 2018 Living Rhinebeck Magazine. An article about her book appeared in the May 14 Daily Freeman of Kingston, NY. and another in the Family Life section of the Poughkeepsie Journal on June 8th. The Millerton News published an article on Thursday, August 2, about her talk at the Pine Plains Library.
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